Additional Government Funding for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Sign this Petition: https://www.change.org/p/seeking-additional-government-funding-for-myalgic-encephalomyelitis-chronic-fatigue-syndrome
My name is Mark Washco and I am suffering from an auto-immune disorder called Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
ME/CFS affects 4 million people in the US alone (note : some more recent estimates are closer to 5 million at this point). Of this number, an estimated twenty-five percent are severely affected, which often includes being bedridden with little to no functioning. Studies have shown this population to have one of the lowest functioning of any chronic illness, comparable to terminal illnesses like end-stage AIDS or end-stage renal failure.
According to Dr. Ron Davis, “people with severe ME/CFS are similar to a critically ill patient 24 hours before they die, except they live like that for years and years.”
Comparative studies have shown the quality of life to be lower than MS, and akin to the quality of life of a cancer patient, dying, in their last week of chemotherapy.
Unfortunately, I am one of those 1 million Americans (25% of 4 million) who falls into the category of moderate/severe. I have recently taken to social media in an effort to raise awareness of this horrible degenerative disease.
Here is a 2 minute video of my daily
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